Hi Teddie
Wanted to say a super welcome to our family and how glad I am that you joined.
I was born with hereditary lymphedema, but it remained stables for decades and involved only the legs.
Then in 1995 and 200 came diagnosis of two seperate types of lymphoma.
In 2002, the lymphedema moved into my arms and in this past year, my abdomen, chest and even back. It is the most horrible situation I've ever dealt with...far worse then the lymphoma itself.
My lungs fill with fluids and breathing is a monumental chore.
It was really strange because I always figured it would be the lymphoma that would eventually get me. Never in my wildest dreams did I ever thinnk the lymphedema would be this way or that it would pose a more serious danger to my life then the lymphoma.
Teddie, I can really really identify with how you must feel and what you are going through. It has been a devestating experience for me as well.
I've never had weight issues before and have been pretty much the same weight all my adult life. Now I have this belly that looks like I've had one too many jelly donuts. That too has been difficult.
Please, have your doctor contact Dr. Paula Stewart about your situation.:
Healthsouth Lakeshore Rehabilitation Hospital
Lakeshore Drive
Birmingham, AL
205-868-2098
205-868-2290
paula.stewart@healthsouth.com
Don't quit, hun....Dr. Stewart just may well be able to advise yor doc on how you can be helped.
She can advise both your doc and your lymphedema therapist. If you don't have a therapist, look on the left index under "Therapists" When you click on it, it will open up and there will be a section
"Schools of Therapy." Click on it and you can go direct to the lymphedema schools of therapy and locate a therapist in your area.
Again, I am so very glad you joine and look very much forward to getting to know you. If i can be of any help, just let me know.
Big hug to Ya
Pat
Also, I do self arm massage and abdominal massage relentously and it has helped stablize the swelling.